Professor Karen Collins has worked within the Health and Social Care Research at Sheffield Hallam University since 2007. She spent the previous 15 years working at the University of Sheffield both within the School of Health and Related Research (ScHARR) and the Academic Unit of Supportive Care based in the Medical School. Her background is in health services research and she has substantial experience in undertaking health services research and project management. Her specific expertise is focused on the psycho-oncology (specifically breast cancer), patient satisfaction, patient and public involvement in health research and qualitative methodology.
Professor Collins has worked within Health and Social Care Research at Sheffield Hallam University since 2007. She currently leads the Cancer, Palliative care and End of Life Research theme within the centre. This focuses on health service research with a particular focus on cancer services, patient and public involvement in decision making, service evaluation and health economics. In addition the team has responsibility on behalf of the Centre for postgraduate research student recruitment and methods training, student experience, environment and progression, research ethics and internal promotion of research. Her background is in health services research and she has substantial experience in undertaking health services research and project management.
Her specific expertise is focused on the psycho-oncology (specifically breast cancer), patient satisfaction, patient and public involvement in health research, qualitative and mixed methodology. She has secured over £2.5 million of research income in the last five years across 9 projects. She is an invited Expert Adviser to prestigious international and UK research committees which include the International Collaboration on Participatory Health Research, UK National NHS Bowel Cancer Screening Programme Research Committee and INVOLVE (advisory body on patient and public involvement in research to the Department of Health).
She is the author of 51 international academic publications, 19 published abstracts and 61 conference papers, 28 of which were given at international conferences or seminars.She is also a scientific reviewer for 7 academic journals and 7 national funding bodies. She has 6 successful PhD Completions and 1 MD completion. She currently has 9 PhD students (5 as Director of Studies)
Psycho-oncology (specifically breast cancer), patient satisfaction, patient and public involvement in health research, qualitative and mixed methods research.
Allied Health Professions
Health And Wellbeing
- Centre for Health and Social Care Research
Wyld L, Reed M, Collins K et al. RCT to evaluate the efficacy of a DSI in older women with breast cancer Funder: National Institute for Health Research, Programme Grant for Applied Research.
Skilbeck J, Fowler-Davis S, Kilner K, Collins K. Evaluation of the Patient Acuity and Dependency Tool at St Luke’s Hospice. Funder: St Lukes Hospice, Sheffield.
Hodgson D, Allerton R, Clarkson S, Collins K. Building resilience in the cancer workforce. Funder: Macmillan Cancer Care.
Dixey J, Snowden J, Greenfield D, Walters S, Littlewood C, Mawson S, Keen C, Collins K. Is it feasible to conduct a randomised controlled trial of pre- transplant exercise (pre-habilitation) for multiple myeloma Funder: NIHR Research for Patient Benefit (RfPB).
Jones G, Hughes J, Bekker H, Collins K, Skull J, Greenfield D. Cancer, Fertility and Me: The development of a fertility preservation resource package to improve the quality of life and decision making process in women with cancer in South Yorkshire. Funder: Yorkshire Cancer Research.
Smith MC, Collins K, Roberts J, Godbole P. Qualitative analysis of adolescent male’s knowledge and experience of testicular pain, and their views to presentation to emergency healthcare services. Funder: Sheffield Children's NHS Foundation Trust Children's Charity.
Probst H, Reed H, Bragg C, Langley J, Collins K, Robertson C, Lee C. Positioning and Organ Stabilisation during Breast Cancer Radiation Therapy: SuPPORT 4 All Bra. Funder: NIHR i4i Programme.
Singh K, Strickland S, Cope S, Collins K, Hancock B, Seckl M. The experiences of patients with gestational trophoblastic neoplasia treated with high dose chemotherapy and stem cell transplant; a qualitative study. Funder: Weston Park Cancer Charity.
Crank H, Collins K, Greenfield D, Dixey J, Humphreys L. Development of an integrated approach to promoting and sustaining recovery in cancer patients through exercise in Sheffield Funder: Weston Park Cancer Charity.
Wyld L, Reed M, Collins K et al. Bridging the Age Gap in Breast Cancer: Improving Outcomes for Older Women. Funder: National Institute for Health Research, Programme Grant for Applied Research.
Collins K, Hughes P, Ibbotson R. Survey of Professionals on the experience of using integrated care pathways for caring for people in the last days to hours of life. Report to: The Association for Palliative Medicine of Great Britain and Ireland. July 2013.
Noble B, Hughes PM, Bath P, Ahmed N, Collins K. A feasibility study of an holistic needs assessment questionnaire in a supportive and palliative care service. Report to Macmillan Cancer Support Nov 2012.
Caldon L, Noble B, Ahmedzai S, Collins K, Reed MWR. Patient and professional factors influencing choice of surgery in the management of breast cancer: A qualitative and quantitative study. Report to Cancer Research UK Dec 2012.
Elwyn G et al . Building a decision explorer for women deciding about breast cancer treatments (BRESDEX). Report to Cancer Research UK July 2010.
Collins K, Wyld L Psycho-social and Physical Outcomes in Women at Increased Familial Breast Cancer Risk. Report to North Trent Cancer Research Network (Supportive and Primary Care Oncology Research Group) Sept 2011.
Wyld L, Collins K, J Karnon, T Robinson, M Reed. Extension of mammographic breast screening to the over 70s: Assessment of efficacy, practicality and patient preferences. Report to NIHR Research for Patient Benefit Programme Sept 2010.
Age UK, Breast Cancer Campaign, Breast Cancer Care, Macmillan Cancer Care, Marie Curie Cancer Care, University of Sheffield (SchARR, Dept of Oncology, Dept of Nursing) Cardiff University, University of Sussex, University of Brighton, University of Leicester, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield Clinical Commissioning Group, Sheffield City Council, North Trent Cancer Network Consumer Research Panel.
MACHACZEK, Katarzyna, ALLMARK, Peter, GOYDER, Elizabeth, GRANT, Gordon, RICKETTS, Tom, POLLARD, Nicholas, BOOTH, Andrew, HARROP, Deborah, DE-LA-HAYE, Stephanie, COLLINS, Karen and GREEN, Geoff (2018). A scoping study of interventions to increase the uptake of physical activity (PA) amongst individuals with mild-to-moderate depression (MMD). BMC Public Health.
COLLINS, Karen, GEE, Melanie, CLACK, Anna and WYLD, Lynda (2018). The psycho-social impact of contralateral risk reducing mastectomy (CRRM) on women: a rapid review. Psycho-Oncology, 27 (1), 43-52.
COLLINS, Karen, REED, Malcolm, LIFFORD, Kate, BURTON, Maria, EDWARDS, Adrian, RING, Alistair, BRAIN, Katherine, HARDER, Helena, ROBINSON, Thompson, CHEUNG, Kwok Leung, MORGAN, Jenna, AUDISIO, Riccardo, WARD, Susan, RICHARDS, Paul, MARTIN, Charlene, CHATER, Tim, PEMBERTON, Kirsty, NETTLESHIP, Anthony, MURRAY, Christopher, WALTERS, Stephen, BORTOLAMI, Oscar, ARMITAGE, Fiona, LEONARD, Robert, GATH, Jacqui, REVELL, Deirdre, GREEN, Tracy and WYLD, Lynda (2017). Bridging the age gap in breast cancer: evaluation of decision support interventions for older women with operable breast cancer: protocol for a cluster randomised controlled trial. BMJ open, 7 (7), e015133.
DUNHAM, Margaret, ALLMARK, Peter and COLLINS, Karen (2017). Older people's experiences of cancer pain : a qualitative study nursing older people. Nursing Older People, 29 (6), 28-32.
BURTON, Maria, KILNER, Karen, GORDON, Frances, COLLINS, Karen, WYLD, Lynda, LIFFORD, Kate, ALLISON, Annabel and REED, Malcolm (2017). Information needs and decision-making preferences of older women offered a choice between surgery and primary endocrine therapy for early breast cancer. Psych-oncology.
JONES, G L, HUGHES, Jenny, MAHMOODI, N, GREENFIELD, David, BRAUTEN-SMITH, G, SKULL, J, GATH, J, YEOMANSON, D, BASKIND, E, SNOWDEN, J A, JACQUES, R M, VELIKOVA, G, COLLINS, Karen, STARK, D, PHILLIPS, Rodney, LANE, S and BEKKER, H L (2017). Observational study of the development and evaluation of a fertility preservation patient decision aid for teenage and adult women diagnosed with cancer: the Cancer, Fertility and Me research protocol. BMJ Open, 7 (3), e013219.
MORGAN, Jenna, WALTERS, Stephen, COLLINS, Karen, ROBINSON, Thompson, CHEUNG, Kwok-Leung, AUDISIO, Riccardo, REED, Malcolm and WYLD, Lynda (2017). What influences healthcare professionals’ treatment preferences for older women with operable breast cancer? An application of the discrete choice experiment. European Journal of Surgical Oncology. (In Press)
RICHARDS, P., WARD, S., MORGAN, J., LAGORD, C., REED, M., COLLINS, K. and WYLD, L. (2016). The use of surgery in the treatment of ER+ early stage breast cancer in England: variation by time, age and patient characteristics. European Journal of Surgical Oncology, 42 (4), 489-496.
MORGAN, Jenna L, RICHARDS, Paul, ZAMAN, Osama, WARD, Sue, COLLINS, Karen, ROBINSON, Thompson, CHEUNG, Kwok-Leung, AUDISIO, Riccardo A., REED, Malcolm W and WYLD, Lynda (2015). The decision-making process for senior cancer patients: treatment allocation of older women with operable breast cancer in the UK. Cancer Biology & Medicine, 12 (4), 308-315.
RAFIA, R, BRENNAN, A, MADAN, Jason, COLLINS, Karen, REED, Malcolm W R, LAWRENCE, Gill, ROBINSON, Thompson, GREENBERG, David and WYLD, Lynda (2015). Modelling the cost-effectiveness of alternative upper age limits for breast cancer screening in England and Wales. Value In Health, 19 (4), 402-412.
MORGAN, J., RICHARDS, P., WARD, S., FRANCIS, M., LAWRENCE, G., COLLINS, K., REED, M. and WYLD, L. (2015). Case mix does not fully explain variation in rates of non-surgical treatment of older women with operable breast cancer. British Journal of Surgery, 102 (9), 1056-1063.
AHMED, Nisar, HUGHES, P, WINSLOW, M, BATH, P, COLLINS, Karen and NOBLE, B (2015). A pilot randomised controlled trial of a holistic needs assessment questionnaire in a supportive and palliative care service. Journal of Pain and Symptom Management, 50 (5), 587-598.
MORGAN, Jenna, COLLINS, Karen, ROBINSON, Tom, AUDISIO, R, CHEUNG, KL, REED, MWR and WYLD, L (2015). Healthcare professionals' preferences for surgery or primary endocrine therapy to treat older women with operable breast cancer. European Journal of Surgical Oncology, 41 (9), 1234-1242.
MORGAN, J, RICHARDS, P, WARD, S, FRANCIS, M, LAWRENCE, G, COLLINS, Karen, REED, M and WYLD, L (2015). Case mix analysis and variation in rates of non-surgical treatment of older women with operable breast cancer. British Journal of Surgery, 102 (9), 1056-1063.
LIFFORD, Kate J, WITT, Jana, BURTON, Maria, COLLINS, Karen, CALDON, Lisa, EDWARDS, Adrian, REED, Malcolm, WYLD, Lynda and BRAIN, Kate (2015). Understanding older women’s decision making and coping in the context of breast cancer treatment. BMC Medical Informatics and Decision Making, 15 (45).
MORGAN, Jenna, BURTON, Maria, COLLINS, Karen, ROBINSON, TG, AUDISIO, R, CHEUNG, KL, REED, MWR and WYLD, L (2015). The balance of clinician and patient input into treatment decision-making in older women with breast cancer. Psycho-Oncology, 24 (12), 1761-1766.
COLLINS, Karen, BOOTE, Jonathan, ARDRON, David, GATH, Jacqui, GREEN, Tracy and AHMEDZAI, Sam (2015). Making patient and public involvement in cancer and palliative care research a reality : academic support is vital for success. British Medical Journal (BMJ) (Supportive and Palliative Care), 5 (2), 203-206.
JOHNSON, Matthew, TOD, Angela, BRUMMELL, Stephen and COLLINS, Karen (2015). Prognostic communication in cancer : a critical interpretive synthesis of the literature. European Journal of Oncology Nursing, 19 (5), 554-567.
HUGHES, Philippa, AHMED, Nisar, WINSLOW, Michella, WALTER, Stephen J., COLLINS, Karen and NOBLE, Bill (2015). Consumer views on a new holistic screening tool for supportive and palliative care needs: Sheffield Profile for Assessment and Referral for Care (SPARC): A survey of self-help support groups in health care. Health Expectations, 18 (4), 562-577.
COLLINS, Karen, HUGHES, Philippa, IBBOTSON, Rachel, FOY, George and BROOKS, David (2015). Views and experiences of using integrated care pathways (ICPs) for caring for people in the last days to hours of life: results from a cross sectional survey of UK professionals. British Medical Journal Supportive and Palliative Care. (In Press)
BURTON, Maria, COLLINS, Karen, LIFFORD, K, BRAIN, K, WYLD, L, CALDON, L, GATH, J, REVELL, D and REED, M (2014). The information and decision support needs of older women (>75 yrs) facing treatment choices for breast cancer : a qualitative study. Psycho-Oncology, 24 (8), 878-884.
BURTON, Maria, COLLINS, Karen, CALDON, Lisa J. M., WYLD, Lynda and REED, Malcolm W. R. (2014). Information needs of older women faced with a choice of primary endocrine therapy or surgery for early-stage breast cancer : a literature review. Current Breast Cancer Reports, 6 (3), 235-244.
MORGAN, Jenna, WYLD, Lynda, COLLINS, Karen and REED, Malcolm WR (2014). Surgery versus primary endocrine therapy for operable primary breast cancer in elderly women (70 years plus). Cochrane Database of Systematic Reviews, 5.
COLLINS, Karen, MCCLIMENS, Alex, MEKONNEN, Stella and WYLD, Lynda (2014). Breast cancer information and support needs for women with intellectual disabilities : a scoping study. Psycho-Oncology, 23 (8), 892-897.
GOYDER, E, HIND, D, DIMAIRO, M, MINTON, J, EVERSON-HOCK, E, READE, Simon, COPELAND, Robert, CRANK, Helen, HORSPOOL, K, HUMPHREYS, Liam, HUTCHINSON, A, KESTERTON, Sue, LATIMER, N, SCOTT, Emma, SWAILE, Peter, WALTERS, S, WOOD, Rebecca, COLLINS, Karen and COOPER, C (2014). A randomised controlled trial and cost-effectiveness evaluation of 'booster' interventions to sustain increases in physical activity in middle-aged adults in deprived urban neighbourhoods. Health technology assessment, 18 (13), 1-210.
AHMED, N, AHMEDZAI, SH, COLLINS, Karen and NOBLE, Bill (2014). Holistic assessment of supportive and palliative care needs : the evidence for routine systematic questioning. British Medical Journal Supportive and Palliative Care, 4 (3), 238-246.
SIVELL, S, EDWARDS, A, MANSTEAD, ASR, CARTER, B, JOSEPH-WILLIAMS, N, CLEMENTS, A, COLLINS, Karen, DONALD, A and ELWYN, G (2013). Theory based analysis of the effects of decision aids for surgery in early breast cancer : a systematic review. European Journal for Person Centered Healthcare, 1 (1), 165-184.
COLLINS, Karen, CALDON, L and REED, M (2012). Sharing decisions with patients : can web-based tools like BresDex assist patient-centred decision-making? In: Association of Breast Surgery Yearbook. London, Association of Breast Surgery, 52-55.
SIVELL, S, EDWARDS, A, MANSTEAD, ASR, REED, MWR, CALDON, L, COLLINS, Karen, CLEMENTS, A and ELWYN, G (2012). Increasing readiness to decide and strengthening behavioural intentions: evaluating the impact of a web-based patient decision aid for breast cancer treatment options. Patient Education and Counseling, 88 (2), 209-217.
WALTERS, Stephen, WINSLOW, Michelle, COLLINS, Karen, ROBINSON, Thompson, GREEN, Tracy, MADAN, Jason, REED, Malcolm W R and WYLD, Lynda (2011). Health care professionals' preferences for extending mammographic breast screening to the over 70s. Journal of geriatric oncology, 2 (1), 1-10.
COLLINS, Karen and BOOTE, J. (2011). Patient and public involvement in health research. In: WYLD, Linda, (ed.) BASO - The Association for Cancer Surgery yearbook 2011. London, BASO, 61-63.
CALDON, LJM, COLLINS, K, WILDE, DJ, AHMEDZAI, SH, NOBLE, TW, STOTTER, A, SIBBERING, DM, HOLT, S and REED, MWR (2011). Why do hospital mastectomy rates vary? Differences in the decision-making experiences of women with breast cancer. British journal of cancer, 104 (10), 1551-1557.
CALDON, L., COLLINS, K., REED, M. W. R., PATNIK, J., SIVELL, S., CLEMENTS, A. and ELWYN, G. (2010). Clinicians’ concerns about decision support interventions for patients facing breast cancer surgery options: Understanding the challenge of implementing shared decision-making. Health Expectations, 14 (2), 133-146.
CALDON, L. J. M., MARSHALL-CORK, H., SPEED, G., REED, M. W. R. and COLLINS, K. A. (2010). Patients as researchers - innovative experiences in UK National Health Service research. International journal of consumer studies, 34 (5), 547-550.
COLLINS, K., WINSLOW, M., REED, M. W. R., WALTERS, S. J., ROBINSON, T., MADAN, J., GREEN, T., COCKER, H. and WYLD, L. (2010). The views of older women towards mammographic screening: a qualitative and quantitative study. British journal of cancer, 102 (10), 1461-1467.
WYLD, L, COLLINS, Karen, WINSLOW, M, REED, M, ROBINSON, T, WALTERS, S, MADAN, JJ, GREEN, T and COCKER, H (2009). Extension of mammographic screening to the over 70s: a study of patient and health care professional opinion. European Journal of Surgical Oncology, 35 (11), p. 1236.
CALDON, L., WALSH, K, COLLINS, Karen, SIVELL, S., EDWARDS, Adrian G., ELWYN, Glyn and REED, Matthew (2009). New technologies to support the decisions of women facing surgical choices for breast cancer: the reactions and concerns of health professionals. Psycho-Oncology, 18 (3), p. 320.
HUSAIN, L. S., COLLINS, K., REED, M. and WYLD, L. (2008). Choices in cancer treatment: a qualitative study of the older women's (>70 years) perspective. Psycho-oncology, 17 (4), 410-416.
COLLINS, K., STEVENS, T. and AHMEDZAI, S. H. (2007). Can consumer research panels form an effective part of the cancer research community? Clinical effectiveness in nursing, 9 (3-4), 112-118.
BOWNS, I, COLLINS, Karen, WALTERS, S J and MCDONAGH, A J G (2006). Photo-dermoscopic screening in the management of suspected skin cancer. British Journal Of Dermatology (155S), p. 9.
BOWNS, I R, COLLINS, Karen, WALTERS, S J and MCDONAGH, A J (2006). Telemedicine in dermatology: a randomised controlled trial. Health technology assessment, 10 (43), 1-58.
COLLINS, K., BOWNS, I. and WALTERS, S. (2004). Patient satisfaction with teledermatology: quantitative and qualitative results from a randomized controlled trial. Journal of telemedicine and telecare, 10 (1), 29-33.
COLLINS, K., BOWNS, I. and WALTERS, S. (2004). General practitioners’ perceptions of asynchronous telemedicine in a randomized controlled trial of teledermatology. Journal of telemedicine and telecare, 10 (2), 94-98.
COLLINS, K. and O'CATHAIN, A. (2003). The continuum of patient satisfaction: from satisfied to very satisfied. Social science and medicine, 57 (12), 2465-2470.
COLLINS, K. and NICOLSON, P. (2002). The meaning of 'satisfaction' for people with dermatological problems: re-assessing approaches to qualitative health psychology research. Journal of health psychology, 7 (5), 615-629.
COLLINS, Karen, LLOYD-JONES, M, MCDONNELL, Ann, READ, S, JONES, R and CAMERON, A (2000). Do new roles contribute to job satisfaction and retention of staff in nursing and professions allied to medicine? Journal of Nursing Management, 8 (1), 3-12.
COLLINS, K., NICOLSON, P., BOWNS, I. and WALTERS, S. (2000). General practitioners' perceptions of store-and-forward teledermatology. Journal of telemedicine and telecare, 6 (1), 50-53.
READ, S., ROBERTS-DAVIS, M., LLOYD-JONES, M., MCDONNELL, A., COLLINS, K. and JONES, R. (2000). Preparing to work together: education for nurse practitioners, clinical nurse specialists and other ‘new’ nursing roles. Nursing times research, 6 (4), 25-36.
MORRELL, C. J., WALTERS, S. J., DIXON, S., COLLINS, K., BRERETON, L., PETERS, J. and BROOKER, C. G. D. (1998). Cost-effectiveness of community leg ulcer clinics: a randomised controlled trial. British medical journal (BMJ), 7143, 1487-1491.
COLLINS, K., MORRELL, J., PETERS, J., WALTERS, S. J. and BRERETON, L. (1998). Variations in venous leg ulcer care in the community. British Journal of Community Nursing, 3 (1), 6-12.
BROOKER, C, COLLINS, K., AKEHURST, R and REPPER, J. (1997). Mapping the difficulties experienced by clinicians and managers in health and social care who are seeking to develop research skills. International journal of nursing studies, 34 (4), 278-284.
COLLINS, K., MORRELL, J., PETERS, J., WALTERS, S., BROOKER, C. and BRERETON, L. (1997). Problems associated with patient satisfaction surveys. British journal of community health nursing, 2 (3), 156-163.
Bowns I.R, Collins K, Walters SJ, McDonagh AJ. Telemedicine in dermatology: a randomised controlled trial. Health Technology Assessment 2006; 10(43)
Collins K (1999) Nurses and PAMs in innovative roles: job satisfaction and its contributing factors. Nursing Standard, 13, 4:31-35.
International, national, regional and local committee membership
Reviewer for national funding bodies Reviewer for academic journals
9 current PhD students (6 as Director of Studies)
What factors influence the decision to offer post-operative Radiotherapy to elderly breast cancer patients?
Unspoken voices: What are the perspectives of people who use alternative and augmentative communication (AAC) on the impact and effectiveness of AAC equipment?
Metastatic castrate resistant prostate cancer and the role of exercise
The impact of early breast cancer on Quality of Life in older women: A mixed methods study
Psycho-Oncology: How does the carer experience evolve over time for informal carers of people with long-term conditions
Communication of the risk of recurrence to patients following surgery for non-small cell lung cancer
Decision support needs of older women faced with a choice of Primary Endocrine Therapy or Surgery for their breast Cancer
Breast cancer decision making by proxy: implications for health care professionals and carers: a mixed methods study
A pragmatic randomised controlled feasibility trial of an holistic needs assessment intervention in a supportive and palliative care service
A pragmatic randomised controlled feasibility trial of an holistic needs assessment intervention in a supportive and palliative care service
Patient and professional factors influencing choice of surgery in the management of breast cancer: A qualitative and quantitative study
Attitudes of older women to treatment choices in breast cancer: a mixed methods study
Understanding older people's cancer pain experience: A phenomenological study
Assessing the impact of reducing risk factors for cardio-vascular disease in Thailand
Health variation in clinician preferences for surgery in older women with operable breast cancer
Karen is a Professor of Health Services Research. Her key areas of expertise are in the fields of patient and public involvement in health research, patient experience and breast cancer. Karen has been involved with studies looking at bridging the age gap in breast cancer research to improve the outcomes for older women and developing an integrated approach to promoting and sustaining recovery in cancer patients through exercise.
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